Introducing Women & Blood Clots, a Life-Saving Initiative

While blood clots can impact anyone, ranging in age, activity levels, weight, overall health and even gender, women alone face a continuum of risk throughout their lifetimes that is unique to them. Birth control and family planning, pregnancy and childbirth, as well as the treatment of menopause symptoms all involve critical decisions that increase a woman’s risk for developing life-threatening blood clots. Already faced with intricate decisions involving self-protection, pregnancy, children, families, aging care and overall health, it is easy for a woman to feel overwhelmed in the face of these decisions. Nearly as varied as the people devastated by blood clots, is the available information aiding women to make healthy decisions for herself and her family.

Until now. Stop the Clot National Blood Clot Alliance, in partnership with the Alexandra L. Rowan Memorial Foundation, have launched a life-saving initiative specifically designed to educate women about the risks they face and ways to reduce those risks, Women & Blood Clots. Tragically, 23 year-old Alexandra lost her life due to a blood clot, with no warning. In order to preserve her memory and continue to raise awareness on a broad scale, this new resource focuses explicitly on the information women need to make informed decisions to protect themselves as well as understand the signs and symptoms of blood clots, including blood clots deep vein thrombosis (DVT) or blood clots in the arms or legs and pulmonary embolism (PE) or blood clots in the lungs.

Women are at an increased risk for blood clots during three key phases of their lives.

  1. While taking oral contraceptives (or birth control). Visit the site or watch this short video to learn more about pregnancy and family planning, including birth control methods and blood clot risks.
  2. During Pregnancy and Childbirth, including the initial weeks post-childbirth. Visit the site or watch this short video for information about risk during pregnancy, including anticoagulation therapy while pregnant, giving birth while taking blood thinners and risk management after giving birth.
  3. When receiving hormone replacement therapy (HRT) for the treatment of menopause symptoms. Visit the site or watch this short video for more information about receiving hormonal treatment as an aging woman.

Women & Blood Clots is a uniquely feminine and bright site dedicated to educating a variety of women while remaining simple to read, easy to navigate and full of valuable, life-preserving information.

infographic

As a blood clot awareness advocate, Women & Blood Clots is very important to me because the issues pertaining to birth control, pregnancy, child birth and hormone replacement therapy and blood clots or recovery are the topics I discuss each and every day with so many of you. While understanding risk, evaluating treatment options, and recognizing the signs and symptoms of potentially deadly blood clots should always be discussed with your chosen medical professional, Women & Blood Clots comes as a much-needed resource in an area that was previously laking for concise, clear and easily accessible information. In my personal life, I still talk to females far too frequently who are taking birth control, pregnant or even a new mother and have no idea they are at risk for something that could claim their lives. This resource is critical, it is essential and it is life-saving.

According to the American Public Health Association, nearly three-quarters of people know little or nothing about DVT, or blood clots that form in the deep veins of the legs. Similar research conducted by the National Blood Clot Alliance shows that fewer than 10% of a national sample of people had any knowledge of DVT and PE. Furthermore, only 30% of people who recognized what a blood clot is were familiar with signs, symptoms, or risks factors. Those statistics are staggering considering that also according to the NBCA, as many 900,000 people in the United States are affected by blood clots. About 100,000 of these individuals will die due to a blood clot. That is about 274 people every single day. The number of deaths due to blood clots each year is greater than the annual number of deaths due to AIDs, breast cancer, and car accidents combined, yet, they remain virtually unheard of by a vast number of people (Stop the Clot).

Please, bookmark Women & Blood Clots, share it on social media or email it to the women in your own life. Even if you do not know how to approach what are often sensitive topics, read over the information or watch the videos and share a few facts with the women you cherish. Usually, the conversation evolves on its own simply by sharing your story. For example, I often share what happened to me and the ladies I have spoken to may say, “I’m so glad that won’t happen to me,” and I then follow up with, “If you’re taking birth control you are still at risk” or “If you’re planning to have children you’re at risk too.” Then I tell them what signs and symptoms to watch out for. Most women want to know more about initiatives they can take to care for themselves or their loved ones and walk away from the conversation feeling empowered about their own health. By equipping people with the knowledge to make informed decisions, we ultimately save lives and hopefully move toward a future where fewer lives are lost as a result of blood clots.

In an effort to foster even more conversation, awareness, education and empowerment, the National Blood Clot Alliance along with the Rowan Foundation, will soon launch an online support group and discussion community, powered by Inspire, to provide a safe and supportive place where, patients, loved ones, family members, friends and caregivers can converse, share and support one another when facing the life-altering effects of blood clots and blood clotting disorders. I will share this resource here once it becomes available and you can sign up for updates too. 

Reader Writes In: Have you been waiting for a resource like this? Who is one person or where is one place you plan to share this information? 

There is hope for healing and you are not alone,

0-BLOG SIGNATURE SARA

Surviving Myself by Don

don

Hello, my name is Don.  I am writing you to share my story and to express my sincere appreciation for your efforts with public awareness of clotting disorders.  I am a Paramedic employed with a Non-Profit medevac helicopter organization. We transport high acuity patients on a regular basis.  These patients range on a very broad […]

Continue reading...

Why You Need A Summer Bucket List

Bucket List Cover

Summer is a time for fun, for adventure, long walks on the beach, sundresses, shorts, campfires, concerts and patio parties. It’s a time to get out, be active, enjoy the warm weather and forget about all of your worries for just a few months. It’s a time to be spontaneous, even reckless, and try new […]

Continue reading...

Three Years of Recovery from a Blood Clot

Three Year Recovery Cover

Three years ago, my life changed forever in ways that I could have never of imagined before that day. I had just kicked off a new marathon training season by running about two miles with my best friend and although I was slightly discouraged (my knee hurt again and I was out of shape), I […]

Continue reading...

Get Your Recovery on Track with INRTracker

Get your recovery on track with INRTracker

Being diagnosed with a blood clot is scary. It’s confusing, it’s overwhelming and all too often, patients are discharged from the hospital with little to no support from their doctors and medical providers. While I had a doctor who was very supportive of me and my recovery, I did not have a positive experience with […]

Continue reading...

Surviving Two DVT & PE Episodes by Victor Zarate

Vic Survivor Speaks Post Graphic

The first one was in July 2011 after a long car ride from Colorado to Florida.  I drove without circulating and developed a DVT in my right calf.  It was sore for about two weeks (I never go to the doctor), I had no clue what was going on. One night soon after, while going […]

Continue reading...

The Power of HealtheVoices15

HealtheVoices 2015

I started Blood Clot Recovery Network nearly three years ago after suffering from a DVT and subsequent PE that nearly ended my life. My doctors told me I was lucky to be alive. My family told me they loved me and most of my friends told me nothing except, “Get well soon.” I told myself […]

Continue reading...

BCRN is Leaving on a Jet Plane to #HealtheVoices15

HealthEVoices_logo_outlines

When I started this blog just about three years ago after suffering from DVT and PE that almost ended my life, I never imagined it would turn in to what it is today. I never imagined anyone would read it beyond a select few. I never imagined how my readership would grow to countries all […]

Continue reading...

A Survivor Speaks: I Am A Mother by Lynda Jurva

I Am A Mother-4

My name is Lynda. I am 35 years old and the mother of 4 beautiful amazing children. My story starts July 28th 2014, one of the happiest days of my life. My precious baby girl was born. As a mother of three boys, this was very exciting! She decided to come four weeks early while […]

Continue reading...

Raising Awareness with Kevin Nealon

Kevin Nealon Cover

You may know Kevin Nealon from his infectious comedies including Happy Gilmore, The Wedding Singer, Daddy Day Care and Anger Management or perhaps as a former Saturday Night Live cast member (1986-1995). Or, maybe you have seen him more recently on Showtime’s Golden Globe winning hit series Weeds. What you may not know is that […]

Continue reading...

Stop the Clot Chicago 5K – Run, walk, donate and make a difference! By Christina Martin

Christina Martin Survivor Speaks

  About 3 years ago I started my journey as a “real runner”.  I have always liked to run but very short distances. In high school I ran 100 meters and in college I would jog to keep my weight down.  I always watched the larger marathons on TV from Chicago, New York and Boston […]

Continue reading...