March: Blood Clot Awareness Month

I seem to have always known blood clots were a serious health concern – especially if you had one in your heart, lungs or brain. I heard about them in the general sense; for example, when discussing the elderly who had passed away or when talking about recovery from a major surgery or hospitalization. I didn’t know the signs or symptoms; that fatality from a blood clot could happen within moments of the first symptoms; or that it would ever happen to me at 29 years old and as an active runner. I thought I had a simple running injury and if I had known the symptoms, it may have made the difference between a treatable Deep Vein Thrombosis (DVT), behind my left knee, and the Pulmonary Embolism (PE) that went to my lung and almost killed me. It was nearly two days since my calf started to hurt until I went to the Emergency Room, breathless and in excruciating pain, both in my leg and side. I couldn’t believe the extent of the injury to my body, mind and emotions. It completely changed my life – no aspect was left untouched. And the thing is, other people – like me and unlike me – don’t know or don’t think it can happen to them. March is Blood Clot Awareness Month and as a blood clot survivor, I am doing everything I can to spread awareness about this deadly and often treatable injury.

I know they majority of people I know do not understand what I went through during my PE and recovery. They do not understand my physical pain and how I could look okay in spite of it. They do not understand that I took almost a month before I could even breathe without the assistance of an oxygen tank and how I went from running several times a week to not even being able to walk from one room to another. They do not understand how I could not use the bathroom by myself in the hospital, that I was in a hospital room well-equipped for medical personnel to take life-saving measures at a moment’s notice or that I couldn’t even sit up for days on end. They do not understand how my personal relationships, professional life and self-confidence suffered, some to irrevocable ends.

I attribute most of this to the fact that many people simply do not understand blood clots and the damage they cause to the body. People understand what it means to have a heart attack, stroke or cancer, but they do not often understand what it means to have a blood clot. They also do not understand that it could happen to them. I am trying to change that and help spread awareness not only for Blood Clot Awareness Month, but always. Consider this post a crash-course in blood clots and while it is in no way all-inclusive, I hope to present to some useful information for you or others you may know who don’t understand what happens when a person has a blood clot. Share it, print it or post it! Let’s get the word out about this silent killer.

Just the Stats

  • Blood clots (DVT and PE) affect am estimated 900,000 Americans each year (Source).
  • Blood clots (DVT and PE) kill an estimated 300,000 Americans each year. The number of deaths from blood clots  exceeds those from breast cancer, AIDS,and motor vehicle accidents combined (Source).
  • Blood clots are a leading cause of preventable hospital deaths in the United States (Source).
  • Blood clots are the leading cause of maternal deaths in the United States (Source).
  • 1 in 3 people who are diagnosed with PE will die.
  • In 25 percent of people who experience a PE, the first symptom is sudden death.
  • One person every minute will be diagnosed with DVT in the U.S. One person every six minutes will die from a PE in the U.S. (Source)
  • 10 to 30 percent of people affected by DVT/PE will die within one month of diagnosis.

The Facts

Who…
  • Can get a blood clot? Anyone can develop a blood clot for a variety of reasons. There are many risk factors that increase your risk for a blood clot (see below for more detail). In a nutshell, you are at increased risk if you or a close family member have had a blood clot before; you have had recent major surgery; you have an inherited clotting condition; have cancer; are immobile for a long time (confined to bed, long-duration plane or car trip, etc.), or use birth control pills. It’s important to understand your own personal risk and also that anyone can develop a DVT at any time.
  • Most commonly treats a blood clot? Patients commonly see their general practitioner for treatment of a blood clot, but can also see a pulmonologist, cardiologist or hematologist. A hematologist is best equipped to handle ongoing care particularly if the patient has a clotting factor or other blood condition/disease contributing to the blood clot.
What…
  • Is a DVT? DVT (short for Deep Vein Thrombosis) is a type of clot that forms in a major vein of the leg or, less commonly, in the arms, pelvis, or other large veins in the body.
  • Is a PE? DVT can develop into PE (short for Pulmonary Embolism), a dangerous condition in which the clot detaches from its point of origin and travels through the bloodstream to the lungs, where it becomes stuck and prevents blood flow.
  • Causes a blood clot? Blood clots may form when either the flow of blood in a vein slows, damage to a vein occurs, or the blood is more clottable (such as with a genetic or autoimmune factor already in the body/blood).
  • Is a blood thinner? Also called an anticoagulant, a blood thinner helps to prevent clots from forming in the blood. They include medicines like aspirin, clopidogrel or Plavix, Warfarin — more commonly known as coumadin — and a variety of other medications that are used in the hospital setting, including injections like Heparin and Lovenox.
  • Happens after someone is diagnosed with a PE/DVT? Often times, a person is admitted to the hospital, especially if he or she is experiencing a PE. They are usually put through a variety of blood and imaging tests to check for high blood clotting factors in the blood (D-Dimer) and actual blood clots (Dopplar Imaging scan). Patients are usually put on blood thinners of some sort as soon as possible. Patients are often treated with pain reliving drugs and sometimes surgery is performed to remove the clot or place a filter to stop the clot from moving (usually in the groin), but these procedures are not always performed.
  • Does it mean if someone has a clotting factor? If someone says they have a clotting factor, it usually means they have a genetic (an example would be Factor V Leiden ) or autoimmune (an example would be Antiphospholipid Syndrome) mutation or condition that causes their blood to clot when it should not.
Where…
  • Can you develop a blood clot? You can develop a blood clot anywhere you have veins, but they are most commonly in the leg and less commonly in the arms, pelvis or other large veins of the body.

Why…
  • Is a blood clot so damaging? A blood clot is damaging because, depending on it’s path, it can cause great trauma to the body’s circulatory system, including the heart. It takes time and energy for the body to heal damage done to the heart and lungs, even if it is micro-damage. A PE is consider a traumatic event for a person’s body to go through.
  • Isn’t there more public awareness about DVT/PE? A lot of times blood clots are not named as the cause of death because a person may have also suffered from underlying conditions, such as cancer. There seems to be more public energy focused on educating people about heart disease, diabetes and cancer, yet organizations like the National Blood Clot Alliance (Stop the Clot) and Clot Connect are making great strides to raise awareness. More recently celebrities such as NACAR’S Champion Driver Brian Vickers, 2010 Olympian, and two time US Sprint Champion, and a Master Sprint World Champion in Speed Skating Rebekah Bradford and Reality TV Star NeNe Leakes have spoken out about their personal encounters with blood clots to help bring awareness to the public.
How…
  • Long does it take for someone to recover from a DVT/PE? Recovery from a DVT and/or PE varies greatly from individual to individual and can take anywhere from several weeks to a year or more. Some people will face complications from DVT, including Postthrombotic Syndrome (PTS) for the rest of their lives.
  • Can I prevent a blood clot?  The good news is, yes, there are many things you can do to help prevent a blood clot. Stay active. Immobility increases the risk of developing clots. If you’ve been sitting for a long period of time (such as at your desk or while traveling) stretch your legs often; Maintain an ideal body weight; Know your risk factors for developing a clot (see below) and discuss with your doctor; Know your family medical history; If you are hospitalized or planning for surgery, ask your about what will be done to prevent blood clots (such as being placed on blood thinners or wearing anti-embolism, also called compression, stockings).

Did you know?

  • One-half of clot patients will have long-term complications and one-third will have a recurrence within 10 years (Source).
  • An estimated $10 billion in medical costs in the US each year can be attributed to DVT and PE (Source).
  • Blood clots are a treatable condition and often preventable condition.

You may want to know

  • A PE is sometimes called a “heart-attack of the lungs.”
  • Deep red is the awareness ribbon color for blood clots, including DVT.
  • Red and white (together) is the awareness ribbon color for PE.
  • Burgundy is the awareness ribbon color for clotting disorders.

DVT (and subsequently PE) risk factors include

  • Hospital stay
  • Major surgery such as abdominal or pelvic surgery
  • Knee or hip replacement
  • Major trauma such as an auto accident or fall
  • Nursing home living
  • Leg paralysis
  • Older than 65 years
  • Trips over four hours by plane, car, train or bus
  • Active cancer or chemotherapy treatment
  • Bone fracture or cast
  • Birth control pills, patch or ring
  • Hormone replacement therapy
  • Pregnancy or a recent birth
  • Prior blood clot or family history of blood clots
  • Heart failure
  • Bed rest over three days
  • Obesity
  • Genetic/hereditary or acquired blood clotting disorder

Symptoms of a DVT

  • Swelling in the affected leg, including swelling in your ankle and foot.
  • Pain in your leg; this can include pain in your ankle and foot. The pain often starts in your calf and can feel like cramping or a charley horse. It won’t go away with regular stretching, massaging or rest.
  • Warmth over the affected area.
  • Changes in your skin color, such as turning pale, red or blue or purple.
  • You need to know in about half of all cases, deep vein thrombosis occurs without any noticeable symptoms.

Symptoms of a PE

  • Unexplained sudden onset of shortness of breath
  • Chest pain or discomfort that worsens when you take a deep breath, cough or even lie down
  • Feeling light headed or dizzy, or fainting
  • Rapid pulse
  • Sweating
  • Coughing up blood
  • A sense of anxiety, nervousness or impending doom

What to do if you think you have a DVT

If you are at all concerned or have any of the symptoms listed above, make an appointment with your primary care physician or visit your local emergency room.

What to do if you think you have a PE

PE is life-threatening, seek emergency medical care immediately or call 9-1-1.

Also visit

There is hope for healing and you are not alone,

0-BLOG SIGNATURE SARA

Comments

  1. Corrine Gray says

    Sara,

    Thank you for all you are doing and I am looking to help with awareness on this as well. I am similar to you as I was 29, a runner, dancer, aerobic instructor, teacher, healthy and last year in September I was hospitalized with a DVT. I had blood clots lining leg from the top of my groin to the bottom of my leg. My iliac vein had collapsed. The doctors were able to get a filter to my heart in time to save my life. With the amount of clots I had the PE condition would have been so bad I would have died before any measures could have been taken. I hopefully will be finishing up my blood thinning therapy this Thursday 3/20. I have my 6 month check up ultra sound to make sure everything is looking okay and to make sure the stents are still doing well. Just a couple of days ago there was concern that my INR was off and I had a PE in my lung (I had just finish a Get Lucky Half Marathon race a couple of days prior). It turned out to be double Pneumonia. It sounds strange, but I have never been more relieved. The did the D-dimer blood test to confirm and waiting to get those results seemed like forever. I am so sorry to hear your story, but so glad you are still here on this earth to help get the message out. Thank you again.

    • Hi Corrine! Thank you so much for being here and for reading this post. Thank you also for the kind things you said!

      It is startling to me how many fit and athletic people have suffered from this, you know. Really scary. I am so glad the doctors were able to help you in time and that you are here to share your story. Wow! We definitely have similar stories, and I am grateful to connect with you. Doctors do not think I would have made it through the night had I waited one more to go in to get help.

      Let me say, IT IS SO ENCOURAGING TO ME that you ran another half marathon. That is something I have a goal to do again, but I am so out of shape now and afraid of getting back into it – I know that might sound silly, but I just am after all that has happened. You have given me so much hope by just saying that.

      If you want to, you can share your story with all of us (and maybe talk about running too) see under How To (on the front) and then Share Your Story. Or, if you would like to write something for my running site //WordstoRunBy.com about your story, I would love to share with them too because I think a lot of times athletes in particular do not think this can happen to them and I am trying to change that. If you want to talk my email is sara @ bloodclotrecovery.net (but with no spaces in the address). If you don’t want to write something (and that is okay too!), thank you for evening sharing what you did! Just sharing this post or other posts like it will help get the word out.

      Thank you so very much, Corrine. You have made my entire day!

  2. Marylou Tello says

    Hi Sara,
    My name is Marylou, I’m 23 years old and you have no idea how much this page made me smile! A lot of people don’t understand how serious clots are! When I was 16 I was rushed to the hospital after passing out on my way to school! When I woke up hours later I was laying in the hospital and I found out I had 12 clots in my leg and 2 in both of my lungs! Since then I have been in and out of the hospital for pain, and new clots even while on blood thinners! I never knew we had an awareness ribbon and that is something I would love to have! Thank you for this wonderful page!

    • Hello Marylou and welcome! I am glad you are here and a Survivor with us! I am also glad to hear you have a smile on your face. 🙂

      You are absolutely correct when you say a lot of people do not understand how serious clots are – let alone even know what they are. I am glad you found this site and are helping to raise awareness too.

      Wishing you well in your recovery and dealing with these ongoing issues. I can’t imagine going through the pain of a clot again – and again – you are a survivor in every sense of the word and provide hope to others facing multiple clotting incidents, Marylou!

  3. ALFRED TURNER says

    Hello, in 2009, dcember, i went to the ER. For a very bad pain in my leg. The doctors could not feel a pulse, and my leg was swollen and cold. Now i was 37 at the time and the dr. Could not understand how i could get a bloodclot at my age, so back to wheni was in the er. The dr. Told me that if i wanted to save my leg, then i had to go to surgery now. After they removed the first clot, i was sent to icu. My mother came to visit and pulled the covers back and the bed was filled with blood. Just that quick another clot had formed in my artery again. After that i went through 6 surgeries within 2 wks. Now, due to the surgery, i had major nerve damage and footdrop, which made me have to be in a wheelchair and crutches. Now 5 yrs later a vascular dr. Tells me that i have blockage in my leg and that i would need a vein bypass. I had it done ths month and i a still in pain, due to the 9 hr surgery i had. I dont complain, because i still have my leg and my life. I thank GOD daily for HIS work. I am looking to start a non profit group here in atlanta. I a going to need help starting this, so please get back with me. You can call me at 678-770-3661, Alfred Turner. Hope to work with you soon

    • Best of luck to you, Alfred! I thank you for taking the initiative to raise awareness in Atlanta. Try connecting with some of the online groups – many people there are very willing to help and sometimes looking for in-person meet-up opportunities. Will let you know if I am ever down your way! Thinking of you as I know you are in pain and this is all very difficult to deal with.

Trackbacks

  1. […] is the first of two giveaways I’m hosting to celebrate Blood Clot Awareness Month! The first giveaway is this bracelet set so you can spread some awareness of your […]

  2. […]  The bad news is more awareness still needs to be raised about this often silent killer. With Blood Clot Awareness Month not far behind us, it seems like blood clots have been in the news much more recently, and for that […]

Speak Your Mind

*

*