Raising Awareness with Kevin Nealon

Kevin Nealon Cover

You may know Kevin Nealon from his infectious comedies including Happy Gilmore, The Wedding Singer, Daddy Day Care and Anger Management or perhaps as a former Saturday Night Live cast member (1986-1995). Or, maybe you have seen him more recently on Showtime’s Golden Globe winning hit series Weeds.

Source

Source

What you may not know is that Kevin is also an atrial fibrillation – or AFib – survivor. Just like so many of you, Kevin has battled a life-threatening medical crisis and also like so many of you, he is passionate about sharing his story to help other patients facing a diagnosis of AFib or who are facing a treatment of blood thinners as a result of blood clots, heart attack or stroke. Kevin has partnered with Mended Hearts, a national non-profit organization committed to providing peer-to-peer cardiac support for survivors of AFib and their caregivers from diagnosis to recovery, and Janssen Pharmaceuticals during March to help raise awareness about blood clots.

Each year up to 900,000 Americans experience a blood clot (DVT or PE), resulting in up to 300,000 deaths. Blood clots do not discriminate based on age, sex, lifestyle – or even fame, as in the case of Kevin. AFib is an irregular, or fluttering, heartbeat that puts people who have the condition at a five times greater risk for a blood clot that can cause a potentially fatal stroke. And in fact, AFib accounts for 15 to 20 percent of all strokes. It is estimated that 2.7 million people are diagnosed with AFib and many more do not even know it (Source).

While these are frightening statistics to say the least, speaking to Kevin about AFib was like talking to an old friend and his passion for raising awareness and ensuring that others do not feel alone as a result of their diagnosis and recovery is the resounding message he conveys.

“I love talking to people about the same health issues,” Kevin said, “It creates an instant connection.

Kevin was swimming in Mexico with his then girlfriend several years ago when he had a racing heart that was concerning enough to cause him to seek medical attention at the hospital. He thought he may be having a heart attack.

“In the hospital,” he said, “I joked about having to use the paddles on me to restart my heart. And then I found out how serious my condition was. They put me out and when I woke up the cardiologist told me the paddles didn’t work.”

Once back at home in Los Angeles, Kevin was diagnosed with AFib, which was an extremely emotional time for him.

“It was so upsetting to me emotionally and it really affected my life,” he recalls, “I was playing less basketball and missing out on playing with me son and that really started to affect me. When you have a family, you really want to be around.” Kevin remembered being very worried because AFib changed his thinking about his entire life and his previously active lifestyle.

As part of his treatment plan, Kevin was initially placed on Warfarin to prevent blood clots, which were the biggest and most concerning risk of AFib to him because of the possibility of stroke.

“I did not want to end up with a stroke,” Kevin said.

Kevin eventually switched to taking Xarelto after speaking to his doctor about his lifestyle and needs. For Kevin, a vegetarian, Xarelto allows him the freedom from known dietary restrictions and the freedom to travel to numerous appearances throughout the year without the constant need for blood monitoring.

His resounding message is that facing a life-altering medical condition is something we, together as advocates, can overcome.

“It’s not the end of the world,” Kevin says, “You can live again.”

Kevin advocates for finding a doctor you believe in, as he did, and to remain in constant communication with your medical team about treatment options.

“Ask your doctors about the benefits and risks of the blood thinners available to you and do what works for you.”

Kevin and Janssen Pharmaceuticals, along with Mended Hearts and myself, have teamed up this month to raise awareness about blood clots and blood clot related stroke and deliver a message of hope to those who are suffering from AFib, blood clots and stroke.

And, the good news is, you can help us raise awareness too. Visit www.Drive4Clots.com to watch a video featuring Kevin’s story (along with the stories of NASCAR’s Brian Vickers and golf legend Arnold Palmer), and for every view received, Janssen will make a donation to Mended Hearts. You can also make a difference for patients living with or who are at risk for blood clots and stroke by sharing this message.

Share this message on Facebook:

Visit www.Drive4Clots.com to watch a video featuring actor/comedian Kevin Nealon’s story (along with the stories of NASCAR’s Brian Vickers and golf legend Arnold Palmer), and for every view received, Janssen will make a donation to Mended Hearts to help raise awareness about AFib, blood clots and stroke during #BloodClot Awareness Month.

Share this message on Twitter:

Visit to watch videos featuring real stories about blood clot survivors and make a difference. #BloodClot Awareness

Share your story. Did you know Kevin Nealon’s story? Have you or someone you know been diagnosed with AFib? What are you doing to make a difference this month?

There is hope for healing and you are not alone,

0-BLOG SIGNATURE SARA

Thank you to Janssen Pharmaceuticals, Kevin Nealon and Michele Packard-Milam of Mended Hearts for the opportunity to discuss AFib, blood clots and blood clot related stroke and raise awareness during Blood Clot Awareness Month and beyond. Together we can make a difference.

Stop the Clot Chicago 5K – Run, walk, donate and make a difference! By Christina Martin

 

Christina Martin Survivor Speaks

About 3 years ago I started my journey as a “real runner”.  I have always liked to run but very short distances. In high school I ran 100 meters and in college I would jog to keep my weight down.  I always watched the larger marathons on TV from Chicago, New York and Boston but thought…yeah, that is not for me.  In October 2013 my best friend Manu and I watched the Chicago Marathon on TV. I cried because I always wanted to do it but thought I couldn’t, it’s 26.2 miles. As I sat there in self-pity and tears, he stared at me with a blank look and walked out the room and said “just do it” for crying out loud.

LOL! That was the trick. I thought why not. If I fail I fail but at least I tried, then I could go back to say “I told you so”.  After many weeks of researching races, shoes, training books, and running gear I signed up for my 1st marathon 2011 Huntington Beach, Surf City on Super Bowl Sunday.

Manu was right by my side ordering movies on TV to get me inspired, buying racing gear and listening to my stories about how many miles I ran, how cold it was to train in Chicago winter, how bad my feet and knees hurt, and all the gritty details. Manu and I made plans to fly into LAX to make it happen. On Feb 6, 2011 I was officially a marathoner at 4 hours and 54 minutes. I remember crossing the finishing line and seeing Manu’s smiling face. I was so so happy. That horrible Charlie-horse since mile 23 was gone, I didn’t feel nauseous and the cuts from my race day shirt on my back didn’t feel so bad…it was officially the happiest day of my life. Manu supported me and made my dreams coming true.

Manu continued to support me through 5 more marathons over the last 4 years. As was preparing for Chicago Marathon Oct 12, 2014 (2) days before his birthday when I was informed by Manu’s best friend that Manu passed away from a blood clot. I knew he had issues in the past but he was 36 years young so I didn’t take it that serious.  His last blood clot was misdiagnosed as a hamstring pull and on September 28, 2014 he passed away at the hospital. My heart was officially broken, as my best friend who I love with all my heart went to be with the Lord.

Manu was buried on October 10, 2014. I ran the marathon in his honor on October 12, 2014, the hardest thing I have done in my life. Running with a broken heart is 10X more difficult that running with stress fractures, sore knees and medical issues. Instead of looking for his beautiful face at the finish line, I looked at the heavens and said “we did it”! October 14, 2014 was his birthday. I went to his grave site with my marathon bib and knew that I wanted to make a difference.

I’m hosting the 1st Annual Stop the Clot Chicago 5K on Mother’s Day May 10, 2015. It’s to honor Manu Ajamu Williams. I’m working with the National Blood Clot Alliance, a charity that supports awareness and research of blood clots.

Come run/walk with us this spring if you live in or around Chicago so we can STOP THE CLOT.

To find out more (including registering for Stop the Clot Chicago 5K), please visit: //www.stoptheclotchicago.com/

#AwarenessMatters Blood Clot Awareness Month

Blood Clot Awareness 15 Cover

The facts are staggering – every time I read them.

  • Blood clots (DVT and PE) affect an estimated 900,000 Americans each year (Source).
  • Blood clots (DVT and PE) kill an estimated 100,000 Americans each year. The number of deaths from blood clots  exceeds those from breast cancer, AIDS and motor vehicle accidents combined (Source).
  • One person every minute will be diagnosed with DVT in the U.S. One person every six minutes will die from a PE in the U.S. (Source)
  • Blood clots are a leading cause of preventable hospital deaths in the United States (Source).
  • Blood clots are the leading cause of maternal deaths in the United States.
  • 1 in 3 people who are diagnosed with PE will die.
  • In 25 percent of people who experience a PE, the first symptom is sudden death.

The number of deaths from blood clots exceeds those from breast cancer, AIDS and motor vehicle accidents combined. Yet, they are virtually unheard of by the general public. Until very recently, blood clots have even gone unnoticed by the media, however, that is beginning to change and I believe we can continue to make a difference. Thanks to the advocacy work of survivors like NASCAR’S Champion Driver Brian Vickers blood clots are becoming something people have heard of. Even more recently, the unfortunate passing of former former Trail Blazers player Jerome Kersey and blood-clot related health scare of Heat forward player Chris Bosh have elicited even more awareness to this deadly injury/illness. Blood clots do not discriminate, they can impact anyone at any time. As more and more people who have lost because of or survived blood clots, the more and more awareness we can raise. #AwarenessMatters. It makes a difference. We can make a difference.

Social Media Badges

To use these images on your Facebook, simply right click on the image, Save As to your computer and then upload!

Facebook Cover

mar 15 cover 2

Facebook Profile Picture

mar 15 prof 2

Post Graphic

Awareness Matters Post

Connect with BCRN on Facebook and Twitter for even more social media images and #AwarenessMatters posts throughout the entire month of March.

Information Sharing

Share, share, share. Tell someone you know about the signs, symptoms and risk factors of blood clots. Knowing could save your life or the life of someone you love. You can also share this post on social media or through email.

Symptoms of DVT
    • Swelling in the affected leg, including swelling in your ankle and foot.
    • Pain in your leg; this can include pain in your ankle and foot. The pain often starts in your calf and can feel like cramping or a charley horse. It won’t go away with regular stretching, massaging or rest.
    • Warmth over the affected area.
    • Changes in your skin color, such as turning pale, red or blue or purple.
    • You need to know in about half of all cases, deep vein thrombosis occurs without any noticeable symptoms.
Symptoms of PE
    • Unexplained sudden onset of shortness of breath
    • Chest pain or discomfort that worsens when you take a deep breath, cough or even lie down
    • Feeling light headed or dizzy, or fainting
    • Rapid pulse
    • Sweating
    • Coughing up blood
    • A sense of anxiety, nervousness or impending doom
Risk Factors
    • Hospital stay
    • Major surgery such as abdominal or pelvic surgery
    • Knee or hip replacement
    • Major trauma such as an auto accident or fall
    • Nursing home living
    • Leg paralysis
    • Older than 65 years
    • Trips over four hours by plane, car, train or bus
    • Active cancer or chemotherapy treatment
    • Bone fracture or cast
    • Birth control pills, patch or ring
    • Hormone replacement therapy
    • Pregnancy or a recent birth
    • Prior blood clot or family history of blood clots
    • Heart failure
    • Bed rest over three days
    • Obesity
    • Genetic/hereditary or acquired blood clotting disorder

Share your story. How are you raising awareness this March?

There is hope for healing and you are not alone,

0-BLOG SIGNATURE SARA